February 2023 Newsletter for Caregivers

Welcome to the February newsletter!

Dementia-Like

"Some causes of Dementia or Dementia-like symptoms can be reversed. Your doctor may identify and treat these causes:

Infections and immune disorders. Dementia-like symptoms can result from fever or other side effects of your body's attempt to fight off an infection.

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Mild cognitive impairment (MCI)

Not necessarily "Dementia" in the strictest sense of the word, but a condition that commonly leads to Dementia, and therefore there should be a high level of concern.

"Mild cognitive impairment (MCI) is a condition in which people have memory or other thinking problems greater than normal for their age and education, but their symptoms are not as severe as those seen in people with Alzheimer’s disease.

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AIDS dementia complex (ADC)

AIDS dementia complex (ADC), or HIV-associated dementia (HAD), occurs primarily in persons with more advanced HIV infection. Symptoms include encephalitis (inflammation of the brain), behavioral changes, and a gradual decline in cognitive function, including trouble with concentration, memory, and attention. Persons with ADC also show progressive slowing of motor function and loss of dexterity and coordination. When left untreated, ADC can be fatal. It is rare when anti-retroviral therapy is used.  

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January 2023 Newsletter for Caregivers

Welcome to the January newsletter!

Posterior Cortical Atrophy

Posterior cortical atrophy (PCA), also called Benson's syndrome, is the visual variant of Alzheimer’s disease. The disease causes shrinkage (atrophy) of the back part of the brain, causing a progressive decline in vision. People with PCA may often go to see an eye doctor first, thinking that their difficulties are due to a problem with their eyes and that they may need new glasses.

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Young-Onset Dementia

Young-Onset is often also referred to as "Early-Onset." Yet, it should be differentiated from another commonly used phrase: "Early Stage Dementia," which is more appropriate to describe someone in the early stages of Dementia, at any age. "Young-Onset Dementia is conventionally thought to include patients with onset before 65 years of age.

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Mixed Dementia

Autopsy studies looking at the brains of people who had Dementia suggest that a majority of those age 80 and older probably had 'Mixed Dementia,' caused by processes related to both Alzheimer’s disease [or, other Dementia] and vascular disease. In fact, some studies indicate that mixed vascular-degenerative Dementia is the most common cause of dementia in the elderly.

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December 2022 Newsletter for Caregivers

Welcome to the December newsletter!

What is Elder Abuse?

Each year hundreds of thousands of older persons are abused, neglected, and exploited. Many victims are people who are older, frail, and vulnerable and cannot help themselves and depend on others to meet their most basic needs. Abusers of older adults are both women and men, and may be family members, friends, or "trusted others."

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The effect of geriatric intervention in frail elderly patients receiving chemotherapy for colorectal cancer: a randomized trial (GERICO)

Background: Better surgical techniques, chemotherapy and biological therapy have improved survival in patients with colorectal cancer (CRC), most markedly in younger patients. About half of patients over 70 years receive dose reductions or early treatment discontinuation of the planned adjuvant or first-line treatment due to side effects.

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Elder Neglect

Elder neglect occurs when a carer fails to properly care for you. A carer may be a family member or someone else who is responsible for caring for you. Your carer may not bathe, dress, or feed you regularly. He or she may leave you alone in unsafe places. He or she may not give you the treatments you need, or give you the wrong amount of medicines. Neglect can happen in your own home, the carer's home, or a facility, such as a nursing home.

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September 2022 Newsletter for Caregivers

Welcome to the September newsletter!

7 Best Practices for Managing Difficult Behaviors in Long Term Care

With all the recent restrictions on psychotropic medications in skilled nursing facilities, many facilities find themselves struggling with a resurgence in unwanted resident behaviors that were previously well-managed by anti-psychotics, benzodiazepines and other drugs.

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Molecular brain changes linked to APOE4, the main susceptibility gene for Alzheimer's disease

Recent breakthroughs have revealed a great deal about Alzheimer's disease, but researchers have yet to paint a complete picture of how genetic risk for the illness causes the brain damage that ultimately leads to memory loss and cognitive decline. A new study from the Keck School of Medicine of USC, just published in the Journal of Experimental Medicine, adds a crucial piece to that puzzle.

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Tips for reducing dementia risk

More than 55 million people worldwide are believed to be living with dementia, according to the World Health Organization. Ronald Petersen, M.D., a neurologist and director of Mayo Clinic's Alzheimer's Disease Research Center, says you can't prevent dementia, but you can reduce your risk.

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August 2022 Newsletter for Caregivers

Welcome to the August newsletter!

Definitions - Dementia Society of America (DSA)

We have collected definitions we believe will be helpful to you. We also offer a variety of presentations and programs to help people living with these conditions and their families and caregivers. You don’t have to make this journey alone. We can help. Access additional Dementia resources here.

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Lewy Body - Dementia Society of America (DSA)

Lewy body disease is one of the most common causes of Dementia in the elderly. Lewy body disease happens when abnormal structures, called Lewy bodies, build up in areas of the brain. The disease may cause a wide range of symptoms, including changes in alertness and attention, hallucinations, problems with movement and posture, muscle stiffness, and confusion.

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Causes of Death in People With Alzheimer's Disease

The Alzheimer's Association notes that Alzheimer's disease is the sixth leading cause of death in the United States.1 It also points out that out of the top 10 causes of death, it's the only one without an effective treatment or cure.

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March 2022 Newsletter for Caregivers

Welcome to the March newsletter!

A Blood Test to Detect Alzheimer's Disease Moves Closer to Reality

A simple blood test may be able to tell you whether you have Alzheimer's disease and, in some cases, it can detect the disease decades before symptoms set in.

Research presented at this year's virtual Alzheimer's Association International Conference (AAIC) on Tuesday and published in the Journal of the American Medical Association (JAMA) focused on a new blood test that can detect a specific type of protein.

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4 Reasons You Shouldn't Avoid Talking to Your Doctor About Dementia

Patients and health care providers aren’t always on the same page when it comes to dementia. And stigma surrounding the disease factors into the disconnect, new AARP research shows.

Nearly 20 percent of adults 40 and older say they would feel ashamed or embarrassed if they had dementia, according to an AARP survey

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How Menopause Messes With Your Brain

Each year, over one million women in the U.S. go through menopause, which can cause symptoms including hot flashes, weight gain, low or fluctuating libido and sleep problems. But there’s another change that carries even more health implications: an increased risk of Alzheimer’s disease.

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December 2021 Newsletter for Caregivers

Welcome to the December newsletter!

Mayo Clinic - Lewy body dementia

Lewy body dementia, also known as dementia with Lewy bodies, is the second most common type of progressive dementia after Alzheimer's disease. Protein deposits, called Lewy bodies, develop in nerve cells in the brain regions involved in thinking, memory and movement (motor control).

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NIH - What Is Lewy Body Dementia?

Lewy body dementia (LBD) is a disease associated with abnormal deposits of a protein called alpha-synuclein in the brain. These deposits, called Lewy bodies, affect chemicals in the brain whose changes, in turn, can lead to problems with thinking, movement, behavior, and mood. Lewy body dementia is one of the most common causes of dementia.

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Lewy Bodies, Dementia, and Parkinson’s – What Does it all Mean?

Here are two common scenarios that may sound familiar:

Scenario 1

A patient develops a series of neurologic symptoms, is evaluated by a neurologist and is told that she has Parkinson’s disease (PD). She then visits another neurologist for a second opinion and is told she has Lewy Body Dementia (LBD).

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July 2021 Newsletter for Caregivers

Welcome to the July newsletter!

Ways to Help Prevent Alzheimer’s Disease

Alzheimer’s disease is a devastating illness that affects over 27 million people world wide. It is the more prevalent form of dementia, which is a loss of cognitive ability. The symptoms of Alzheimer’s include confusion, short term memory loss, mood swings, and difficulties using language. Eventually, the brain becomes so damaged that bodily functions become impaired, leading to death. Death typically occurs within ten years of diagnosis.

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3 Incredible Breakthroughs That Are Transforming Our Understanding of the Brain

For a long time it was assumed that while, sure, brains were amazing, there wasn’t much you could do for an individual brain besides watch it decline. But scientists have made great strides in understanding the organ’s complexities, and their work is starting to affect our daily lives. Researchers are currently looking into more detailed brain imaging, better genetic-risk profiling, and dementia-related biomarkers in blood, urine, and spinal fluid—and that’s just diagnostics.

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Alzheimer's treatments: What's on the horizon?

Current Alzheimer's treatments temporarily improve symptoms of memory loss and problems with thinking and reasoning.

These Alzheimer's treatments boost performance of chemicals in the brain that carry information from one brain cell to another. However, these treatments don't stop the underlying decline and death of brain cells. As more cells die, Alzheimer's disease continues to progress.

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May 2021 Newsletter for Caregivers

Welcome to the May newsletter!

Deaf Caregivers Say Fixing Communication Barriers in Health Care Is Long Overdue

t was a fall in the middle of the night in 2012 when my mother's life shifted. She had been suffering from arthritis for many years and when she fell, she was rendered immobile. I was living with her at the time, with my younger brother. As we headed to the hospital, I could sense my life changing. I would need to become my mother's caregiver now. What I didn't realize is that I would face my first test in the emergency room.

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The long, exhausting reach of dementia care

The Covid-19 pandemic is reinforcing a grim lesson we should have taken to heart but haven’t: Some diseases harm not only patients but also people close to them, reverberating throughout society.

In the U.S., the tallies of patients and deaths is nearing 30 million and 540,000, respectively, as I write this. Millions more have suffered isolation, depression, anxiety, and declining health. More than 20 million have seen cuts to their pay or even unemployment.

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Gardening Therapy for Dementia

For someone who loves gardening, there is nothing like the meticulous, careful work of planning, planting and caring for a garden. The creative and tactile experience of being near to nature is not only good for our well-being, but it may in fact help to relieve the symptoms associated with Alzheimer’s disease and other dementias.

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April 2021 Newsletter for Caregivers

Welcome to the April newsletter!

New Studies Show Dire State Of Nursing Homes Even Before The Pandemic

Certified Nursing Assistants, or CNAs, do inglorious work. They are often on the frontlines of nursing homes, helping patients bathe, eat and use the bathroom. McDavid Rodriguez said he knows that patients can often feel embarrassed when getting help with basic functions.

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Therapeutic Use of Self: How to Facilitate Positive Behaviors in Someone With Dementia

Never underestimate the powerful impact you can have on others—particularly those you provide care for. Understanding your potential to influence the emotional experiences, and, in turn, the behavior expressions of your residents is an essential step to providing quality dementia care.

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Indoor Visits With Nursing Home Residents OK, New CDC Guidance Says

Health officials have relaxed federal COVID-19 guidance for nursing homes for the first time since September, recommending that even unvaccinated visitors and residents be allowed to meet in person under most circumstances.

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February 2021 Newsletter for Caregivers

Welcome to the February newsletter!

Ultrasound Treatment Shows Promising Results Against Alzheimer’s

Roughly 6 million people live with Alzheimer’s in America alone. This neurodegenerative disease can have a severe impact on the individual living with it as well as loved ones. Because of the disease’s prevalence and potential to cause mental health damage, researchers are constantly looking for ways to combat it. Most recently, a study has found success using ultrasound energy to combat Alzheimer’s once and for all.

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Alzheimer's stages: How the disease progresses

Alzheimer's disease tends to develop slowly and gradually worsens over several years. Eventually, Alzheimer's disease affects most areas of your brain. Memory, thinking, judgment, language, problem-solving, personality and movement can all be affected by the disease.

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How Alzheimer's is diagnosed

To diagnose Alzheimer's dementia, doctors evaluate your signs and symptoms and conduct several tests.

An accurate diagnosis of Alzheimer's dementia is an important first step to ensure you have appropriate treatment, care, family education and plans for the future.

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December 2020 Newsletter for Caregivers

Welcome to the December newsletter!

Culturally relevant dementia care system's missing piece, advocates say

Zeba Taj would often come home sobbing after a shift at the long-term care home in Ottawa where she worked for three years.

Many of the residents there had dementia, and many were from diverse cultural backgrounds. What upset Taj was that the elderly men and women had virtually no access to the languages, food or religious customs they'd been used to their whole lives.

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5 Tips to Prevent Dementia-related Wandering

Wandering is a serious threat to the health and safety of anyone with dementia or Alzheimer’s. Did you know 6 out of 10 people with these illnesses wander? It is important for family and caregivers to plan ahead.

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The Stages of Dementia: How Dementia Progresses

Dementia progresses differently in everyone. Many people will experience the symptoms associated with the following stages of Alzheimer’s disease:

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October 2020 Newsletter for Caregivers

Welcome to the October newsletter!

Predisposition to Infection in the Elderly

With normal aging, there are mild-to-moderate changes within the immune system. In the elderly, however, it is commonly observed that a more profound deficit occurs with regard to immune function. Not only do these changes render a senior susceptible to certain infections, but they also affect the clinical presentation of these infections. Atypical presentation of infection in the elderly may be so subtle that pneumonia or a urinary tract infection may manifest with a change in mental status or mild malaise as the only clinical indication of infection.

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The 5 Most Common Infections in the Elderly

Common infections like influenza and UTIs can happen to anyone, but for adults over the age of 65, these illnesses may be much harder to diagnose — leading to chronic poor health, ongoing discomfort and a higher risk of hospitalization.

In fact, one-third of all deaths in seniors over 65 results from infectious diseases, according to the American Academy of Family Physicians (AAFP). Though seniors are more susceptible to infection overall, seniors with dementia or those who are in long-term care may be at even greater risk.

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Contamination in Nursing Homes

Nursing home facilities are breeding grounds for infectious diseases caused by lack of hygiene, which causes germs to spread and affect patients. This is often due to poor management. It is estimated that 380,000 patients may pass away each year due to infections contracted in these facilities.

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August 2020 Newsletter for Caregivers

Welcome to the August newsletter!

Dr. Todd Schmiedeler

We have included a new interview feature. This month’s interview is one of a series of print interviews conducted by NCBAC™. The series includes leaders in the area of healthcare, aging and dementia. Some have conducted research, some are business leaders and others are experts in the best methods of day to day care.

Our next interview is with Dr. Todd Schmeideler, Senior Vice President, Trilogy Health Services and Trilogy Foundation. Click here to read.

Our standard 3 articles and CEU quiz follow below.

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5 Key Tips to Communicating With Dementia Patients

Dementia is described simply as symptoms that affect the communication, intellectual, and social functioning of an individual. It is a condition that affects the brain, which controls all functions of our body. It is not a specific disease; rather there are many causes of dementia. Alzheimer's disease is the most common form of dementia.

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Alzheimer's Disease and Related Dementias

Scientists do not yet fully understand what causes Alzheimer’s disease. There likely is not a single cause but rather several factors that can affect each person differently.

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What Is Validation Therapy and How Can It Help?

Receiving a diagnosis of dementia for a parent or loved one can be an emotional and scary time. While parts of life begin to make sense, others begin to crumble in painful ways. Fortunately, current research suggests there are ways we can help our elderly family members to cope with the challenges of their disease.

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June 2020 Newsletter for Caregivers

Welcome to the June newsletter!

3 Ways to Respond When Someone with Alzheimer’s Says I Want to Go Home

Hearing someone say “I want to go home” over and over again is something Alzheimer’s and dementia caregivers often deal with.

It’s especially frustrating to hear when they’re already home.

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6 Small but Important Ways to Take Care of Yourself When Caring for Someone With Alzheimer’s

Ask anyone caring for a loved one with a serious illness what they do for self-care, and you’ll probably hear laughter in response. Self-care can be tough in the best of circumstances, but it’s especially difficult for people who spend the majority of their time caring for someone else. Alzheimer’s caregivers are no exception. Still, some people find a way. We spoke with several current and former Alzheimer’s caregivers about the seemingly small self-care moves they’ve found helpful.

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5 Surprising Alzheimer's Triggers

Whether you're struggling with Alzheimer's yourself or watching a loved one live with it, there is no debating it's an awful disease. And as more researchers are tracking possible triggers of the disease, they're coming across more data connecting everyday exposures to an increased risk. While no study has yet to definitively say, "Yes, this is what causes Alzheimer's," these 5 things are believed to play a role and should be avoided.

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May 2020 Newsletter for Caregivers

Welcome to the May newsletter!

Chris Gerardi

We have included a new interview feature. This month’s interview is one of a series of print interviews conducted by NCBAC™. The series includes leaders in the area of healthcare, aging and dementia. Some have conducted research, some are business leaders and others are experts in the best methods of day to day care.

Our next interview is with Chris Gerardi, President and Owner of a HomeHelpers franchise in the Chicago area. Click here to read.

Our standard 3 articles and CEU quiz follow below.

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6 Ideas to Get Seniors to Drink More Water

Dehydration is a common and serious health problem for seniors

Preventing dehydration is important because it can cause serious health issues and is a common cause of hospitalization in people over age 65. Being properly hydrated is also needed for certain medications to work.

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The Most Natural Way To Boost Mental Health During COVID-19

It can help improve mental health and wellbeing and reduce anxiety.

Even modest reminders of nature can help boost mental health during lockdown, research finds. Nature can be experienced on a walk close to home, in the back yard or even indoors.

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How Coronavirus Stress Could Affect Thinking Skills

Stress can temporarily damage these cognitive abilities.

Stress makes it harder for people to plan for the future, new research finds. This is because being under stress robs people of their ability to use their memory effectively.

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April 2020 Newsletter for Caregivers

Welcome to the April newsletter!

Coronavirus FAQs: Is A Homemade Mask Effective? And What's The Best Way To Wear One?

Since the beginning of the global coronavirus pandemic, Americans have been told by the Centers for Disease Control and Prevention not to wear masks unless they are sick, caring for a sick person who is unable to wear one or working in health care. Numerous reasons have been given: that they don't offer significant protection from germs, that the most effective models need special fitting in order to work, that regular people don't typically wear them correctly, that they'll give people a false sense of security and cause them to be lax about hand-washing and social distancing.

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AARP Answers: Social Security and Coronavirus

The latest on monthly benefits, stimulus checks, office closures and more

I receive Social Security benefits. Am I also eligible to receive a stimulus check?

Yes. AARP worked hard to ensure that Social Security recipients are included in the relief payment, which is part of the CARES Act.

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Scientists Probe How Coronavirus Might Travel Through The Air

When researcher Josh Santarpia stands at the foot of a bed, taking measurements with a device that can detect tiny, invisible particles of mucus or saliva that come out of someone's mouth and move through the air, he can tell whether the bedridden person is speaking or not just by looking at the read-out on his instrument.

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February 2020 Newsletter for Caregivers

Welcome to the February newsletter!

Rev. Rebecca Delzell

We have included a new interview feature. This month’s interview is one of a series of print interviews conducted by NCBAC™. The series includes leaders in the area of healthcare, aging and dementia. Some have conducted research, some are business leaders and others are experts in the best methods of day to day care.

Our next interview is with Rev. Rebecca Delzell, a hospice chaplain. Click here to read.

Our standard 3 articles and CEU quiz follow below.

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How Chronic Loneliness Can Trigger Health Problems

Last time you visited your doctor, did he or she ask if you felt lonely? Did your doctor inquire about how many friendships you have or ask about how many community groups you are involved with?

There’s a growing body of research showing that extended loneliness and isolation are detrimental to health, and can even shorten people’s lives. One example is an analysis of about 70 studies conducted between 1980 and 2014 looking into loneliness and social isolation as risk factors for mortality.

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What Caregivers Should Know About Managing a Loved One's Money

Age and ill health, particularly dementia or other conditions that affect memory and cognition, can impair a person's ability to responsibly manage one of the most important components of their livelihood: their money.

That makes it all the more important to have the uneasy but essential conversation with loved ones about who will oversee their finances, and how, if they no longer can. Here are some important legal and financial tools to understand and potential problems to look out for if you need to take on the role of money manager or find someone else who can.

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The Next Frontier in Alzheimer’s Research

For all the bad news about Alzheimer's disease — the failed drug trials, the elusive target of amyloid plaques, the massive toll it's taking on our aging population and their caregivers — research into the brain disease has been given an unprecedented financial boost in recent years. Federal funding has soared to 2.4 billion dollars in 2019, as the National Institutes of Health has made this area of research a funding priority unmatched in scale since the agency's war on cancer in the 1970s.

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January 2020 Newsletter for Caregivers

Welcome to the January newsletter!

Boris Lantzman, President, Friendly Care

We have included a new interview feature. This month’s interview is one of a series of print interviews conducted by NCBAC™. The series includes leaders in the area of healthcare, aging and dementia. Some have conducted research, some are business leaders and others are experts in the best methods of day to day care.

Our next interview is with Boris Lantzman, President, Friendly Care Click here to read.

Our standard 3 articles and CEU quiz follow below.

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A Delay in Getting Hearing Aids Can Mean More than Hearing Trouble

A few years ago, researchers at the Johns Hopkins University School of Medicine gave us yet another reason to worry about getting Alzheimer’s disease and other dementias: They demonstrated an association between hearing loss and cognitive decline.

Specifically, people with moderate hearing loss were twice as likely to experience cognitive decline as their peers, while those with severe hearing loss faced five times the risk.

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Hospital Readmissions for Infections Too High Among Older Adults, Study Finds

Too many Medicare enrollees are being readmitted to the hospital to be treated for the same infection they had while they were inpatients, a new study shows.

Researchers at the University of Michigan looked at more than 318,000 hospital discharge records for Medicare patients 65 and older and found that 2.5 percent returned to the hospital within a month to treat the same infection they left with — also called a linked infection.

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The Promise of Community Health Workers

They go by different names: outreach workers, promotores, non-traditional health workers, community health representatives. Whatever they may be called, community health workers (CHWs) act as a vital link between health services and the neighborhoods they serve.

These frontline public health professionals understand the unique needs of their underserved communities — from language barriers to lack of transportation or access to healthy food. They focus on building trust by applying their special understanding of language and/or culture to improve health knowledge and ultimately, improve health.

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November 2019 Newsletter for Caregivers

Welcome to the November newsletter!

Donna Surges Tatum, PhD, CAE, CAEd™
Founder, NCBAC™

We have included a new interview feature. This month’s interview is one of a series of print interviews conducted by NCBAC™. The series includes leaders in the area of healthcare, aging and dementia. Some have conducted research, some are business leaders and others are experts in the best methods of day to day care.

Our first interview is with Dr. Donna Surges Tatum who is the founder and president of NCBAC™. Click here to read.

Our standard 3 articles and CEU quiz follow below.

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The Diagnosis Is Alzheimer’s. But That’s Probably Not the Only Problem.

Allan Gallup, a retired lawyer and businessman, grew increasingly forgetful in his last few years. Eventually, he could no longer remember how to use a computer or the television. Although he needed a catheter, he kept forgetting and pulling it out.

It was Alzheimer’s disease, the doctors said. So after Mr. Gallup died in 2017 at age 87, his brain was sent to Washington University in St. Louis to be examined as part of a national study of the disease.

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Will We Ever Cure Alzheimer’s?

It’s a rare person in America who doesn’t know of someone with Alzheimer’s disease. The most common type of dementia, it afflicts about 44 million people worldwide, including 5.5 million in the United States.

Experts predict those numbers could triple by 2050 as the older population increases. So why is there still no effective treatment for it, and no proven way to prevent or delay its effects?

Why is there still no comprehensive understanding of what causes the disease or who is destined to develop it?

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A Brain Scan May Predict Alzheimer’s. Should You Get One?

Juli Engel was delighted when a neurologist recommended a PET scan to determine whether amyloid — the protein clumps associated with an increased risk of Alzheimer’s disease — was accumulating in her mother’s brain.

“My internal response was, ‘Yay!’” said Ms. Engel, 65, a geriatric care manager in Austin, Tex., who has been making almost monthly trips to help her mother in Florida. “He’s using every tool to try to determine what’s going on.”

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